Scott Tsai—Toronto, Canada
In the name of the Lord Jesus Christ, I share this testimony to
glorify God for His love, providence, and faithfulness. Over seven years ago,
our younger daughter, Chloe, was born with several congenital heart defects and
received open-heart surgery when she was just five months old. Through this
challenging journey, my wife and I have witnessed God's miraculous hand at
work, teaching us profound lessons about trust, faith, and service even during
trials. As I reflect on this journey, I hope this testimony offers comfort to
those facing their own trials and serves as a reminder of how God's grace truly
sustains us.
THE
DIAGNOSIS
Chloe was born in July 2017. Everything appeared normal prenatally,
except that the doctors thought she would be a small baby. We felt no reason
for concern and welcomed her into the world with joy and hope.
At Chloe's one-month
checkup, however, our family doctor detected a heart murmur. She reassured us
that this was not uncommon in infants but recommended a visit to a pediatric
cardiologist as a precautionary measure. The ultrasound by the pediatric
cardiologist did not yield a
definitive result, but an atrial septal defect (ASD)—a
hole in Chloe's heart—was suspected. This condition often
heals itself. The worst that could happen for children with this condition who
appeared as healthy as Chloe might just be a minor catheter surgery. Chloe was
referred to a major children's hospital, Toronto's Hospital for Sick Children
(SickKids), for a sedated ultrasound. This test confirmed that Chloe's condition
was far more serious than we had imagined. She was diagnosed with:
1.
Atrioventricular septal defect
(AVSD): Two large holes in the walls separating the upper and lower chambers of
the heart. This defect allows oxygen-rich blood from the left side of the heart
to mix with oxygen-poor blood from the right side, reducing oxygen supply to
her organs and potentially leading to heart failure.
2.
Pulmonary valve stenosis: A
narrowing of the pulmonary valve, which creates back pressure and restricts
blood flow to the lungs.
3.
An extra leaflet in the mitral
valve: A rare structural abnormality that was not initially considered
problematic.
The doctors informed us immediately that Chloe would require
open-heart surgery to repair the two large holes. Hearing this diagnosis was
distressing. The previously unlikely scenario that our precious baby daughter
would require open-heart surgery was now a certainty.
God's Unexpected
Miracle
While the diagnosis was much worse than expected, the doctors shared
something remarkable. Chloe's pulmonary valve stenosis, which typically would
be another cause for concern, had actually helped
balance the effects of her AVSD. The narrowed valve increased pressure in her
right ventricle, thereby reducing the harm caused by her AVSD. This delicate
balance allowed Chloe to grow and develop normally until surgery.
It was an unexpected miracle. Chloe's defects, though severe, seemed
to counteract each other in a way that prevented immediate danger. While the
balance was temporary and unsustainable in the long run, it bought Chloe the
time she needed to prepare for surgery. Looking back, we saw this as God's reassuring
hand at work.
THE FIRST
SURGERY: A TEST OF FAITH
Eventually, we began to feel better about the upcoming open-heart
surgery. On one hand, we were reluctant to see Chloe undergo such a major
procedure at a young age. On the other hand, we were satisfied with the
surgical team's confidence in the surgery. Many of our church brothers and
sisters were praying for Chloe, and Chloe had been baptized, so we felt hopeful.
On December 19, 2017, when Chloe was just five months old, we
brought her to SickKids for open-heart surgery. We placed Chloe into the hands
of the surgical team at around 7:30 a.m.
The surgery lasted for a long eight and a half hours; the outcomes
were mixed. The good news was that the AVSD had been successfully repaired, and
Chloe's pulmonary valve stenosis was also corrected. However, the mitral valve
with the extra leaflet abnormality, initially thought to be inconsequential,
had started leaking severely.
The surgeon had attempted to repair the mitral valve three times
during the operation, but each attempt failed. After stopping Chloe's heart,
placing her on a heart-lung bypass machine, and reopening the heart for each
repair attempt, the surgeon decided it was too dangerous to try a fourth time. Chloe's
small body had endured a lot of trauma.
We were devastated. The surgery we had hoped would resolve Chloe's condition now
left her in a critical state with a severely leaking mitral valve. The surgical
team's plan was to let her stabilize for about ten days in the critical care unit
before deciding on the next steps.
As we drove home that evening, leaving Chloe in the critical care unit,
we wept silently. The burden of uncertainty weighed heavily on us. We had
placed so much confidence in the medical team and their expertise, but we had
somehow forgotten an essential truth—our lives are ultimately in God's hands.
A Journey
of Faith and Prayer
In the days following the first surgery, I reflected deeply on my
reliance on human understanding. I realized that while medical expertise and
technology are gifts from God, He alone determines the outcome. Together, my
wife and I prayed for forgiveness and strength. Even during our discussions
with the chief of surgery at the hospital, when my wife asked him what could
have caused the leaky mitral valve, he responded: "That is something that
I would have to ask my Maker." This remark reminded us of the Bible verse,
I lift
up my eyes to the mountains—where does my help come from?
My help comes from the LORD, the Maker of heaven and
earth. (Ps 121:1–2, NIV)[1]
Indeed, the physicians tried their best, but their
ability to help Chloe was limited; God is the Maker. He is the One who created Chloe's
heart, and He is the only One who can fix it.
Our prayers also began to change. At first, we
prayed for God's will to be done, unsure of whether it was His will to heal
Chloe. But as we meditated on Daniel's three friends before the fiery furnace,
we learned to pray boldly with faith.
"If that is the case, our God whom we
serve is able to deliver us from the burning fiery furnace, and He will deliver
us from your hand, O king." (Dan 3:17)
We had always believed in God's ability to heal, but were unsure whether it was His will to heal Chloe.
However, at this point, we believed not only that God was able to help Chloe,
but also that He would deliver Chloe. Even so, our faith would remain steadfast
regardless of the outcome, just as the three friends declared, "But if not,... we do not serve your gods" (Dan 3:18).
This shift in perspective gave us peace and renewed
hope. We believed that God not only had the power to heal Chloe but that He
would heal her according to His loving will.
THE SECOND SURGERY AND RECOVERY
Nine days after the first operation, Chloe
underwent a second surgery to address the mitral valve leakage. This time, the
procedure was more successful. The surgeon reduced the leakage from a severe to
a moderate level, stabilizing Chloe's condition.
Chloe spent another week in the critical care unit
before transitioning to the recovery ward. Despite everything she had endured,
her recovery was surprisingly swift. She began interacting with us, smiling,
and showing signs of improvement, which lifted our spirits.
However, she faced another challenge: feeding.
Chloe had been reliant on a feeding tube for several weeks, and we were
concerned that she would develop a long-term dependency. Many infants who
undergo open-heart surgery struggle to transition back to normal feeding, often
requiring the tube for months or even years. The hospital required Chloe to be
fed with a feeding tube indefinitely because she was not feeding normally, and
her body was still very fragile and weak.
Lessons
in Trust and Service
At the time, I was serving on the church council of
the church in Toronto as the Pastoral Religious Affairs, and my term was
nearing its end. As Chloe's condition unfolded, I informed the council that I
could not serve another term. After Chloe returned home, I had to return to
work, and Chloe required weekly evaluations at SickKids. If at any point her
evaluations indicated worsening mitral valve leakage, she would need to undergo
another open-heart surgery immediately. On top of this, Chloe's feeding tube
became the source of physical and emotional strain at home. Balancing Chloe's care
with my church responsibilities felt impossible.
When I shared that I did not wish to serve another
term, both the local preacher and my father acknowledged the formidable challenges
my family faced. However, they urged us to trust God to decide whom He wanted
to use, leaving the matter in His hands during the upcoming annual general
meeting (AGM). At the time, I did not agree with their perspective.
One night, however, something unexpected happened.
Chloe pulled out the feeding tube herself. Rather than reinserting it, we
decided to trust in God. As my wife fed Chloe, I knelt next to them, praying
for God to help Chloe drink on her own. We continued this throughout the night.
To our amazement, Chloe began feeding more and more.
I prayed earnestly, asking God to have mercy on us,
and I was reminded of the encouragement from the preacher and my father—that I
should let God choose His worker. My wife and I discussed this intensely and
prayed together, surrendering the matter to God. We decided to submit to Him to
determine whether I should serve on the council again. Contrary to my earlier
resolve, I would not reject the nomination. However, it was incredibly
difficult. I truly believed that the situation was impossible. We asked God to
take care of Chloe because, if her health remained so precarious, I would not
know how to manage everything.
By the next morning, Chloe was drinking without any
assistance—another answered prayer and a significant turning point in her
recovery. In the weeks and months that followed, her health improved rapidly. Every
subsequent evaluation showed that Chloe was clinically and visibly as healthy
as any other child. The hospital gradually reduced the frequency of her
appointments, shifting from weekly to bi-weekly, then monthly, then bimonthly,
and eventually to biannual evaluations. Now, we only return to the hospital for
evaluations every nine months.
As I reflected on everything that had happened, it
became clear to me that when God calls someone to serve, He also provides the
strength, resources, and circumstances to make it possible—even when it seems
impossible. Chloe's miraculous recovery enabled me to continue serving on the
council for several more terms. Through this experience, I learned that serving
God is not about our abilities but about our willingness to submit to His will.
It is such an honor and privilege to be called to serve the Lord.
"But who am I, and who are my people,
That we should be able to offer so willingly as this?
For all things come from You,
And of Your own we have given You." (1
Chr 29:14)
GOD'S GRACE IN EVERYDAY LIFE
The doctors always told us that Chloe might have
less energy than other kids and could tire more easily, but they encouraged us
not to restrict her activities. They wanted to reassure us that it was alright if
we noticed Chloe being less active than her peers. However, a few months after
her surgery, we began to notice that Chloe was a
surprisingly active baby.
As Chloe grew older, we realized, to our amazement,
that she was somehow more energetic than anyone else in our family. At age
five, Chloe could run and stay on the soccer field for forty-five minutes
straight without needing a break. My wife and I often discuss how this is a
great grace from God. We believe He made Chloe extra active and energetic to
comfort us—His way of assuring us that Chloe would be fine. Her energy level
was far beyond what any of the doctors had anticipated.
Since her surgery at five months old, Chloe had
needed to take heart medicine twice daily. Whenever we asked the doctor whether
Chloe would have to continue taking the medicine for the rest of her life, the
answer was always yes. However, when Chloe was five years old, she expressed
her dislike of the medicine for the first time, saying, "Mommy and Daddy,
I don't like this medicine. Can I stop taking it?" We explained to her
that the medicine was for her heart and that she needed to keep taking it, but
we also encouraged her to pray and share her feelings with the Lord Jesus.
Chloe prayed, and a few weeks later, during her
nine-month checkup, my wife hesitantly mentioned to the doctor: "Chloe
would like to know if she has to keep taking the medicine."
To our astonishment, the doctor replied,
"Well, the medicine doesn't seem to contribute anything. She can stop
taking it." It was a beautiful reminder of how much Jesus loves little
children and quickly responds to their supplications! We are also grateful
that, at such a young age, Chloe already has the experience of praying to God
and receiving a response.
Today, Chloe is so active that she no longer
requires medication, and we often forget she ever underwent major surgery.
Truly, God's grace is sufficient for us. When we experience His love deeply, it
enables us to move beyond the pain and sadness of the past and focus on the
blessings of the present.
CONCLUSION
I truly thank God for His grace, that He teaches us
various lessons through the experiences in our lives. Through Chloe's journey,
my family has learned three profound lessons:
1.
Trust in God
above all else: human plans and abilities are limited, but God is sovereign
over every outcome.
2.
Believe in God's
will to deliver: faith means trusting not only in God's
power but also in His desire to help us.
3.
Allow God to
use us: when God calls us to serve, He provides everything we need to fulfill
His purpose, even when the trials seem impossible to bear.
Chloe's journey has strengthened our faith, deepened our trust in God,
and taught us to rely on Him in all circumstances. May her story be a testament
to God's unfailing grace and love. All glory and praise be to Him, the Master
of our lives, our Healer, and our strength.
My grace is sufficient for you, for My
strength is made perfect in weakness. (2 Cor 12:9)